The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and wellbeing of older persons and informal caregivers across the Netherlands. The database was developed in part to ensure uniform collection of outcomes measures, thus promoting comparability between studies. To date, 60 different research projects have contributed data to this initiative, resulting in a pooled dataset >43,000 older persons and >9,000 informal caregivers.
TOPICS Data Sharing Initiative is funded by The National Care for the Elderly Programme on behalf of the Organisation of Health Research and Development (ZonMw – The Netherlands). For further information, please visit the Dutch National Care for the Elderly Programme website.
More information on the rules and responsibilities with regard to the data collection, data storing and data sharing can be found in the Code of conduct TOPICS-MDS V2.