TOPICS-MDS is freely available for external users. To date, 53 individual research projects have participated in this data-sharing initiative, resulting in a pooled dataset of >43,000 older persons and >9,000 informal caregivers. 'TOPICS-MDS total number of participants per project and time of measurement’ provides information such as sampling frame, study design, and the number of participants for each project and time of measurement (T0 and Tx).
Following submission, requests will be assessed by TOPICS Project Group for feasibility, societal relevance of the research question, and overlap with previous or ongoing data requests.
Given that data are de-identified, studies using TOPICS-MDS fall outside the scope of the Dutch Medical Research Involving Human Subjects Act (WMO) (see Ethical Review Exemption document). Please be advised, however, that ethical approval may be required within your own institution.