Radboud University Medical Center Bloemhoff A, Schoon Y, Smulders K, Akkermans R, Vloet LCM, van den Berg K, Berben SAA, On behalf of the TOPICS-MDS Consortium. Older persons are frailer after an emergency care visit to the out-of-hours general practitioner cooperative in the Netherlands: a cross-sectional descriptive TOPICS-MDS study. BMC Family Practice, 2020 21:171. doi: 10.1186/s12875-020-01220-y
Pel-Littel RE, Hofman CS, Yu L, Metzelthin SF, Leeuwis FH, Blom JW, et al. (2019) Recommendations of older adults on how to use the PROM ‘TOPICS-MDS’ in healthcare conversations: A Delphi study. PLoS ONE 14(11): e0225344. doi: 10.1371/journal.pone.0225344
Melis R.J.F., van Hout H.P.J., Metzelthin S.F. (2019). The Older Persons and Informal Caregivers Survey Minimum Dataset (TOPICS-MDS). In: Gu D., Dupre M. (eds) Encyclopedia of Gerontology and Population Aging. Springer, Cham. doi: 1007/978-3-319-69892-2
van Boekel L.C., Cloin J.C.M., Luijkx K.G. Community-Dwelling and Recently Widowed Older Adults: Effects of Spousal Loss on Psychological Well-Being, Perceived Quality of Life, and Health-Care Costs.The International Journal of Aging and Human Development, sept 2019. doi: 10.1177/0091415019871204
Mueller-Schotte S, Zuithoff NPA, van der Schouw YT, Schuurmans MJ, Bleijenberg N, Trends in Risk of Limitations in Instrumental Activities of Daily Living Over Age in Older Persons With and Without Multiple Chronic Conditions. Journals of Gerontology (J Gerontol A Biol Sci Med Sci), 2019, Vol XX, No. XX, 1-7. doi: 10.1093/gerona/glz049
Boumans R, van Meulen F, Hindriks K, Neerincx M, Olde Rikkert MGM, Robot for health data acquisition among older adults: a pilot randomised controlled cross-over trial. BMJ Qual Saf 2019;0:1-7. doi: 10.1136/bnjqs-2018-008977
Smit LC, Schuurmans MJ, Blom JW, Fabbricotti IN, Jansen APD, Kempen GIJM, Koopmans R, Looman WM, Melis RJF, Metzelthin SF, Moll van Charante EP, Muntinga ME, Ruikes FGH, Spoorenberg SLW, Suijker JJ, Wynia K, Gussekloo J, De Wit NJ, Bleijenberg N, Unravelling complex primary-care programs to maintain independent living in older people: a systematic overview. Journal of Clinical Epidemiology, Volume 96, April 2018, Pages 110-119. doi: org/10.1016/jclinepi.2017.12.013
PMID: 29289764
Joukje C Swinkels, Marjolein I Broese van Groenou, Alice de Boer, Theo G van Tilburg, Male and Female Partner-Caregivers' Burden: Does It Get Worse Over Time?. The Gerontologist, Oct 2018, gny132. doi: 10.1093/geront/gny132
Metzelthin, S.F., Verbakel, E., Veenstra, M.Y., Van Exel, J., Ambergen, A.W., Kempen, G.I., Positive and negative outcomes of informal caregiving at home and institutional long-term care: a cros-sectional study. BMC Geriatrics, 2017, 17(1), 232. doi: 10.1186/s12877-017-0620-3
PMID: 29017453
Blom J.W., Van den Hout W.B., Den Elzen W.P.J., Drewes Y.M., Bleijenberg N., Fabbricotti I.N., Jansen, A.P.D., Kempen G.I.J.M., Koopmans R., Looman W.M., Melis R.J.F., Metzelthin S.F., Moll van Charante E.P., Muntinga M.E., Numans M.E., Ruikes F.G.H., Spoorenberg S.L.W., Stijnen T., Suijker, J.J., De Wit N.J., Wynia K., Wind A.W., Gussekloo J., on behalf of the TOPICS-MDS research consortium, Effectiveness and cost-effectiveness of proactive and multidisciplinary integrated care for older people with complex problems in general practice: an individual participant data meta-analysis. Age and Ageing, Volume 47, Issue 5, 1 September 2018, Pages 705–714. doi: 10.1093/ageing/afy091
Mueller-Schotte S, Zuithoff NPA, van der Schouw YT, Schuurmans MJ, Bleijenberg N. Trajectories of limitations in instrumental activities of daily living in frail older adults with vision, hearing, or dual sensory loss. The Journals of Gerontology, gly155, 2018 June. doi: 10.1093/gerona/gly155
PMID: 29982391
Santoso A.M.M., Lutomski J.E., Hofman C.S., Metzelthin S.F., Blom J.W., Van der Wees P.J., Olde Rikkert M.G.M., Melis R.J.F., on behalf of TOPICS-MDS Consortium. The Development of a Patient-Reported Outcome Measure for Geriatric Care: The Older Persons and Informal Caregivers Survey Short Form (TOPICS-SF). Value in Health, 2018 Apr. doi: 10.1016/j.jval.2018.02.011
Franse CB, van Grieken A, Qin L, et al. Ethnic differences in frailty: a cross-sectional study of pooled data from community-dwelling older persons in the Netherlands. BMJ Open, 2018;8:e022241. doi: 10.1136/bmjopen-2018-022241
PMID: 30093521
Looman W.N., Fabbricotti I.N., Blom J.W., Jansen A.P.D., Lutomski J.E., Metzelthin S.F., Huijsman R., on behalf of the TOPICS-MDS Research Consortium. The frail older person does not exist: development of frailty profiles with latent class analysis. BMC Geriatrics, 2018 18:84. doi: 10.1186/s12877-018-0776-5
PMID: 29618334
Geessink N, Schoon Y, Van Goor H, Olde Rikkert M, Melis R, on behalf of the TOPICS-MDS consortium. Frailty and quality of life among older people with and without a cancer diagnosis: Findings from TOPICS-MDS. PLoS ONE, 2017 Dec, 1-14. doi: 10.1371/journal.pone.0189648
PMID: 29244837
Franse CB, Van Grieken A, Qin L, Melis RJF, Judith, Rietjens JAC, Raat H. Socioeconomic inequalities in frailty and frailty components among communitydwelling older citizens. PLoS ONE, 1-15, 2017 Nov. doi: 10.1371/journal.pone/0187946
PMID: 29121677
Hems M., Harkes M., Moret-Hartman M., Melis J.F.L., Schoon Y. Eerste ervaringen met patiënt gerapporteerde uitkomstmaten in de geriatrie. Tijdschrift Gerontologie en Geriatrie, 1-10, 2017. doi: 10.1007/s12439-017-0237-1
Lutomski J.E., Santoso A.M.M., Hofman S.C., Olde Rikkert M.G.M., Melis R.J.F., 2017. Responsiveness of the full-length and short form of The Older Persons and Informal Caregivers Survey. Journal of the American Medical Directors Association, 18 (9), 804-805. doi: 10.1016/j.jamda.2017.06.026
PMID: 28859819
Oldenkamp M, Hagedoorn M, Wittek R., Stolk R, Smidt N. The impact of older person’s frailty on the care-related quality of life of their informal caregiver over time: results from the TOPICS-MDS project. Quality of Life Research, 2017;Oct26(10):2705-2716. doi: 10.1007/s11136-017-1606-5
PMID: 28567602
Van Tilburg T, Verbakel E, Broese van Groenou M, Swinkels J, Explaining the Gender Gap in the Caregiving Burden of Partner Caregivers. J Gerontol B Psychol Sci Soc Sci, 2017:00(00);1–9. doi: 10.1093/geronb/gbx036
PMID: 28379560
Verbakel E, Metzelthin SF, Kempen GI. Caregiving to older adults: Determinants of informal caregivers' subjective well-being and formal and informal support as alleviating conditions. J Gerontol B Psychcol Sci Soc Sci., Volume 73, Issue 6, 14 August 2018, 1099–1111. doi: 10.1093/geronb/gbw047
PMID: 27130169
Lutomski JE, Krabbe PF, den Elzen WP, Olde-Rikkert MG, Steyerberg EW, Muntinga ME, Bleijenberg N, Kempen GI, Melis RJ; TOPICS Consortium. Rasch analysis reveals comparative analyses of activities of daily living/instrumental activities of daily living summary scores from different residential settings is inappropriate. J Clin Epidemiol. Volume 74, June 2016, 207-217. doi: 10.1016/j.clinepi.2015.11.006
PMID: 26597973
Lutomski JE, Krabbe PF, Bleijenberg N, Blom JW, Buurman BM, Kempen GI, Muntinga ME, Steyerberg EW, Olde Rikkert MG, Melis RJ. Survey mode biases reporting of activities of daily living and instrumental activities of daily living. J Am Geriatr Soc. 2015 Nov;63(11):2419-21
PMID: 26603070
Hofman CS, Makai P, Boter H, Buurman BM, de Craen AJ, Olde Rikkert MG, Donders R, Melis RJ. The influence of age on health valuations: the older olds prefer functional independence while the younger olds prefer less morbidity. Clin Interv Aging. 2015 Jul 8;10:1131-9. doi: 10.2147/CIA.S78698. eCollection 2015.
PMID: 26185432
Hofman CS, Melis RJ, Donders AR. Adapted Bland-Altman method was used to compare measurement methods with unequal observations per case. J Clin Epidemiol. 2015 Aug;68(8):939-43. doi: 10.1016/j.jclinepi.2015.02.015.
PMID: 25895962
Hofman CS, Makai P, Blom JW, Boter H, Buurman BM, Olde Rikkert MG, Donders R, Melis RJ. Comparing the health state preferences of older persons, informal caregivers and healthcare professionals: a vignette study. PLoS One. 2015 Mar 4;10(3):e0119197. doi: 10.1371/journal.pone.0119197.
PMID: 25739034
Van den Brink D, Lutomski JE, Qin L, den Elzen WPJ, Kempen GIJM, Krabbe PFM, Steyerberg EW, Muntinga M, ter Riet G, Blijenberg N, Olde Rikkert MGM, Melis RJF, on behalf of TOPICS-MDS Consortium. [TOPICS-MDS: A versatile resource for generating scientific and social knowledge for elderly care.] Tijdschrift voor Gerontologie en Geriatrie. 2015 Apr;46(2):78-91. doi: 10.1007/s12439-015-0127-3. [Article in Dutch]
PMID: 25877469
Lutomski JE, van Exel NJA, Kempen GIJM, Moll van Charante EP, den Elzen WPJ, Jansen APD, Krabbe PFM, Steunenberg B, Steyerberg EW, Olde Rikkert MGM, Melis RJF. Validation of the Care-Related Quality of Life Instrument in different study settings: findings from The Older Persons and Informal Caregivers Minimum DataSet (TOPICS-MDS). Quality of Life Research. 2015 May;24(5):1281-93. doi: 10.1007/s11136-014-0841-2.
PMID: 25381121
Lutomski JE, Baars MAE, Schalk BWM, Boter H, Buurman BM, den Elzen WPJ, Jansen APD, Kempen GIJM, Steunenberg B, Steyerberg EW, Olde Rikkert MGM, Melis RJF. The development of The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS): A large-scale data sharing initiative. PLoS ONE. 2013 Dec 4;8(12):e81673. doi: 10.1371/journal.pone.0081673.
PMID: 24324716
Lutomski JE, Baars MA, van Kempen JA, Buurman BM, den Elzen WP, Jansen AP, Kempen GI, Krabbe PF, Steunenberg B, Steyerberg EW, Olde-Rikkert MG, Melis RJ. Validation of a frailty index from the older persons and informal caregivers survey minimum data set. J Am Geriatr Soc. 2013 Sep;61(9):1625-7.
PMID: 24028364